We are thrilled to be able to share the news that our beautiful Tiny Dancer is in remission.
This is the best possible news we could ever have hoped for. We would like to sincerely thank the doctors in Crumlin, the radiologists in London and the researchers who created the anti-body trial.
As there is such a high risk of Lily-Mae relapsing, for which there are very limited options, the family have decided to enrol Lily-Mae on a phase 2 clinical trial in Michigan, America.
It means that Lily-Mae will travel to America every 3 months for the next two years to collect drugs called DFMO and have scans. The results of the DFMO trial have been excellent so far and it has no significant side-effects.
We would also like to thank you all from the bottom of our hearts for your prayers, your positive energy, your distance healing and your love for both Lily-Mae and her family.
While this past 16 months have been an absolute nightmare, the love shown to our little girl has been absolutely overwhelming.
Thank you, thank you, thank you!
Judith, Leighton, Evan and, of course, our Tiny Dancer, Lily-Mae.

Words really don’t do justice . . . . . . . . . so happy for you and may Lily Mae continue to inspire love and inspiration. I hope 2014 brings you peace and tranquility.