On the first of June 2012 my daughter Lily-Mae was diagnosed with Stage 4 Neuroblastoma, a rare and extremely aggressive childhood cancer of the nervous system.
How do you deal with that? For me and my partner Jude the way of dealing with it have been the polar opposites. Jude is searching the internet and talking to anyone who will listen, with a need for knowledge and to outpour.
I have put on the blinkers and busy myself with the day to day routine of trying to get enough food and drink into Lily-Mae so she is strong enough for what is to come. Busy with the half dozen or so medicines and injections she needs every day and new dressings for the holes that they have put in her (Hickman Line).
The whole picture for me is too big, with such a poor chance of coming out the other side that I find it impossible to take in or talk about it. I live in hope and can only take it one day at a time. I said on Facebook when we first found out ‘I am about to take to longest and darkest journey of my life, give me the strength to carry my family through this.’ The journey has started and the strength is coming from everyone who is supporting us.
Lily –Mae is amazing and she is fighting.
Leighton Morrison
Hi there, just heard via facebook that ;your brave little girl is cancer free in her bones and bone marrow, great news, such a brave little girl. Wishing her all the very best for her surgery. All the ladies in the Maldron Hotel are rooting for her. xxxxxx